PART 1
I
'It is a solid lump', he
said.
I’m not sure what it
was about the way he said it. The quiet tone of his voice. The subtle emphasis
on ‘solid’. I lay there, looking at the
ceiling. Directly above me was an air conditioning unit and I was wondering
whether behind the apparent clean surface there was a clump of accumulated dust
which would fall on me at any moment.
I knew then that this
was a moment I would remember for the rest of my life. This room. This view.
And those 5 words. This is the moment my life changed, on a hospital bed,
looking at an air-conditioning unit, worried about dust falling on my face.
II
Two months ago I felt
the lump in my left breast. But, while women are constantly told to check
themselves we’re also told that breasts do have lumps that come and go. It’s normal.
The day before I turned 40 I received a letter from the NHS telling me that I
was at a ripe old age, they were offering a free MOT. I had the lump then. I
was going to ask the nurse about it. But I didn’t.
I waited. It didn’t
go. Two months on it was still there. I asked my husband to feel it. This would
be a good test. Usually he couldn’t see or feel many of the peculiarities I
happened to have across on my body. But he could feel it. Between him and his brother –
who also lived with us – they pushed me to make a GP appointment. I went, still
moderately convinced that he would tell me to get out of his consulting room
and stop wasting his time. He didn’t. Instead he examined me. The lump moved
about. This, he concluded meant it could be a cyst because cancer – he
informed me – normally latches on to body tissue and therefore tends to be more firmly fixed.
This lump was too mobile. However, it is also extremely probable that he didn't want to worry me unduly. He told me that, either way, I had to be referred. I received a phone call the next day
and shortly after that my husband and I found ourselves in the One Stop Breast
Clinic.
I had never had a
mammogram before. My mother, however, had regaled me with horror stories. Her
breasts are of significant proportions. I did not inherit those assets. At
all. So she needed several x-rays per breast and said that, once squashed, her
nipple was somewhere near Godalming. She also said the squashing was painful.
By way of providing no further reassurance she then informed me that a flat
chested friend of hers said her mammograms were even worse. So determined were
they to x-ray something, the medical staff pulled skin from around her back
before clamping it down before it escaped to its rightful place. So it was
with some trepidation that I approached the mammogram room.
An extremely kind
medic already knew I hadn’t had one before, so walked me over to the machine
and explained it before getting the process underway. The squashing part was
completely unremarkable. Not a sensation I would necessarily choose to adopt on
a permanent basis but also nothing that caused a wince of pain. And my left
breast received less squashing in honour and recognition of its lump. The worst
part of it was being placed at an unnatural angle, breast on the cold metal plate, arm
draped round the machine to allow an armpit scan and then, having been so
awkwardly placed, instructed to stay still. Admittedly having my breast clamped
gently into place did assist.
Back in the waiting
room we did what the room instructed – and waited. The next test was an
ultrasound. Where the radiographer determined it was a sold lump. This isn’t what was meant
to happen. He was meant to see a fluid filled lump and get out a large needle.
He did indeed get out a needle, but do to a biopsy. So my breast was
anaesthetised and two samples removed with the aid of a loud clicking needle.
The attendant nurse had an amusing time trying the stop me bleeding, wiping up
the blood that had trickled down my side and to my back. Then she pressed on my
breast for a few minutes before applying a dressing. I was instructed to do no
pushing, no pulling, no straining, no washing up, no cooking, no housework.
Perhaps this wasn’t so bad after all. I liked her. Having dressed, I looked
over at the ultrasound man to thank him. He sat in the corner, motionless,
looking at me. Silent. And I knew. From the look in his eyes.
I came out and spoke
to Steve. It’s a solid lump, I told him. Suddenly this was all going
differently to what I had expected.
We waited to see the
consultant. She examined me – the fourth person in 90 minutes to touch my
breasts. It was a thorough check, including armpits, back and shoulder.
‘Whatever it is’, she said ‘ we can deal with it’. This was the only reassuring
thing she said. She told us it was ‘suspicious’ and that she couldn’t say much
more until the biopsy results were back. There was no crumb of comfort to cling
to, no suggestion that it looked benign but they needed to rule out all
possibilities. We all knew what they had seen.
Outside in the
hospital car park the situation and discomfort of the biopsy hit me, and I
burst into tears in Steve’s arms.
After an obligatory
visit to the pub we went home, and I phoned my mother. ‘I have a suspicious
lump’, I told her. It was the first time I had said it out loud. And the tears came
again. I emailed my father and when we spoke later that day I was composed.
Now all that we could
do was wait. I didn’t sleep that night. I wasn’t aware of being worried. It was
more to do with the pain in my left breast which was tender, swollen and
bruised.
III
The following day at
work felt surreal. Nothing had changed, yet everything was different. I felt
sick. Cold. Disbelieving of it all. My father was in town so we agreed to meet
for a coffee. It was nice to see him and I was determined not to cry. It must
have been hard for him – a parent doesn’t expect their child to become ill.
With the power of
google I started researching breast cancer. This was silly. The website tried
to be reassuring, saying that most lumps were completely harmless. It also said
that the visual image on x-rays and ultrasounds could usually discount anything
harmless as benign and cancerous lumps looked quite different. In my mind all I
could see was the ultrasound man, sitting in the corner, looking at me.
My boss let me go home
early. I was due to meet Steve in London to go to a rugby match, but didn’t want to
linger in town until later, so took a train most of the way home – then swapped
onto the train he was on to come all the way back again. It was a rainy evening
and our seats at the Stoop were about 3 inches short of being fully under
cover. I watched the rain, felt my knees getting damp and could not have been
happier. This was real. This was life. I didn’t even mind that Quins lost (which
only happened because Nick Evans had forgotten how to kick – otherwise it would
have been a comfortable win). It just didn’t seem to matter so much.
The following day was
cold. The Goodwood Revival usually starts cold and warms up. Not this year. But
I didn’t mind. The biting chill made me feel alive. Everything was beautiful.
I started to have a
need to put photos up. Me, Steve, family. Things we’d done. It was difficult to
look at some of them. To see me before. It made no sense. Even now I get a lump
in my throat and tightening in my chest when I look at pictures from before. I
printed masses. It was important to have them around, to remind us of our life.
My husband and his
brother seemed to be struggling a little with the situation thus far. They
assured me they were ok but I wondered if they were putting on a show of
strength for me. So, over the weekend, we went for a well deserved session at the pub .
I started telling a few friends what was going on. They were horrified.
Alarmed. With the addition of alcohol my own fears grew. Fear of the unknown,
fear of waiting. Just the empty uncertainty. This limbo in which no plans can
be made or changed and nothing can be taken for granted. The tears rose too.
Fully inebriated, we
foraged for curry and home and in the car I felt unwell. As the curry aroma
wafted towards me I longed for our arrival home. As soon as we got there, I
fought my way out of the car and was immediately sick on the pavement outside
the house.
The results were due
back the following Thursday, but we were due to fly to Istanbul that day, so it
had been agreed that I would call on the Tuesday to see if the results were
available beforehand. The seconds ticked by until the time I was due to call.
The receptionist checked the system. Results were still pending. My heart sank
a little at the prospect of another wait. ‘I’ll phone the lab and chase them
up’ she said. I thanked her for her kindness and help. Two hours later I still
hadn’t heard back. This might be good news, I thought. If the results wouldn’t
be ready today surely the lab would have said so immediately. Then the phone rang, the
noise crashing into the silence around me. ‘I’m sorry’, she said, ‘the results
aren’t going to be ready in time. You go and have a really good holiday and
we’ll deal with this when you get back’. It was hard to know if she was
instructing me to get a good rest in, as things were going to be topsy turvy on
my return, or if she was just being friendly.
We would have to wait
another week and a half. Steve had
suggested changing our flight times but I refused. If it was so serious that
the delay was going to be a problem, I would want to have the holiday. If it
wasn’t serious, then I would want to have had the holiday. So either way, there
was nothing to be gained by changing our current plans.
During the afternoon,
after that phone call, my google research continued. I determined that this
couldn’t be nasty. It was most likely a fibroadenoid as this had the mobile
‘breast mouse’ characteristics of my lump. And I felt well, incredibly well. I
was young (well, only just 40), fit and healthy. It made no sense. I was slightly
embarrassed at having worried our friends and the slight back tracking that
would be needed. But these things happen.
My breast still felt
bruised. It was little wonder really. My lump was between my nipple and where
my cleavage would be if I had breasts large enough to create one. The
ultrasound man had gone in from my armpit to do the biopsy, thereby travelling
almost the full width of my breast. Admittedly, that isn’t actually very far.
But it explained the swelling and yellow bruising.
I was also possibly a
bit sore as I had been going to the gym a lot in the week after the biopsy.
When I told Steve I’d done a chest day he told me I was an idiot.
By the time of the
results appointment, after our return from Istanbul, the only indication left
was that I had a blue bruise around my nipple. Step child the younger had
helpfully suggested that I draw eyes on it and call it a smurf. Always an
upside.
I was at work on the
morning of results day. We had a Macmillan coffee morning. A larger employee,
who was sitting dangerously near to the cakes, commented that he like being a
big chap. 'What was the point of being healthy when one day you could be lying on
a hospital bed dying of nothing'. I smiled. My healthy ways hadn’t
necessarily done me any favours. But it was all going to be ok.
I had butterflies as
we approached the hospital. I have no idea why. We were called through. The
results were conflicting, we were told. The x-ray showed cancer. The biopsy
showed pre-cancer. Either way, it would be a surgical outcome. But she needed
to ascertain whether there was a small cancer inside the lump so that they knew
what they were dealing with. So I was booked in for another biopsy the
following day. To dig deeper. As she spoke I was aware I was saying ok a lot.
But it wasn’t ok.
I suspected that they
had known this when I called before our holiday. Another call to the parents.
My father wondered why, given there was no family history. ‘Well, someone has
to be the first’, I told him. He suggested that I let my elder brother know as
he would pray for me (being a catholic priest he has a hotline to the powers
that be). It was probably time to tell the family. So I emailed both brothers
while Steve updated his family. Bro the elder did indeed promise much
assistance from upstairs. It was hard for bro the younger, being so far away
(Melbourne, Australia). And I felt terrible telling him just before his first
child was due. Given that I was creating family history I hoped he didn’t have
a daughter.
I later found out from
my mother there was distant family history. Apparently her great grandmother had had
it back in the day when they more or less sawed off the affected breast, gave you a beanbag and told you to get on with it. It
didn’t dampen her enthusiasm for life. Allegedly, during the war, she would
navigate the barbed wire on the beach, with one remaining breast swinging
pendulously, muttering that Hitler wasn’t going to disrupt her daily swim.
Steve was allowed in
to watch the second biopsy. This time it was a different man. The bed was positioned
differently. I wasn’t directly under the air conditioning unit, and I could see
the screen. I saw my lump for the first time. A large, black, smudge edged
stain on the screen. He stuck the line into me through which the biopsy needle
would go. I looked at the screen again, which was a mistake. He took the samples
from deep inside the lump. I could feel the pinch as the needle grabbed its
cargo. The second sample was bigger than the first, according to Steve, as he
saw a small bit of flesh hanging off the needle when it was pulled out.
I asked him what it
was like to see bits of my inside being brought out. I was warned that there
was a small risk the second biopsy would also be inconclusive. At this rate
they were going to remove the lump via biopsy. Keyhole surgery in the extreme.
Again, no pushing, no
pulling, no straining etc. I thanked him. Different man. Same look in his eyes.
The line had gone in near my
nipple. This wasn’t going to help the blue nipple bruising. But I didn’t get
the same amount of tenderness or swelling this time.
Taking the train home
the day before new results day was a moment of reflection. This is the last
day, I thought. The last day when I wasn't a definite, confirmed cancer patient, the
last day of this part of my life.
IV
The hospital was
becoming too familiar. When we were called in the doctor told us the second
biopsy had confirmed cancer. I felt nothing. I suppose in a way I had known
from the beginning that this was coming. I wasn’t numb. Not shocked. Not upset.
It had the same impact on me as if you had said it was clouding over outside. If
anything, it was almost a relief, for the uncertainty to end. All I could think
was what a strange, sad job for the doctors. Telling a waiting room full of
women that they had breast cancer.
Because of the size of
tumour (in relation to my breast) I would need a full mastectomy. Followed by
chemotherapy. Followed by radiotherapy. Christ! She started talking about reconstruction
options. I had already decided I didn’t want that. I wasn’t defined by my left
breast. As it was small I wasn’t even sure I would miss it that much.
Apparently that made treatment options easier – you can’t radiotherapy a
reconstructed breast.
We were then sent off
to the breast nurse who showed us into a comfortable room with sofas. And a box
of tissues.
She explained that the
chemo I was scheduled for would make me lose my hair, but that Macmillan would
make me a wig beforehand. The wig would be designed to a style and colour of my
choosing. Steve and Jon wanted the right to pick the style and that I had to
accept their decision – which at the time veered towards blonde plaits,
although step child the younger proposed Princess Leia.
The nurse talked in a
soft, squeaky voice about all the treatments suggested, then handed us a lot of
reading material. One leaflet had a useful diagram depicting a mastectomy. One
drawing was of a woman with two boobs. The other was a woman with one boob and a
straight line where the other would have been. Enormously helpful. I’d worked
that much out for myself. It also talked about depression and that some people
can struggle as they face this life threatening illness. Life threatening! I’d
been alright until I read that. Now I was feeling a bit depressed.
The boys and I agreed
to be honest with feelings at every moment through this. There would be some
days when one was ok and one wasn’t. But we were in it together. The 3
musketeers.
Naturally, as a health
conscious fitness freak an immediate thought that occurred to me was the
potential weight loss. After all, leg amputees lose about a stone. Admittedly a
leg is a damned sight bigger than a breast – but the principle remains. I
consulted Steve on the matter. ‘About an ounce’, was his considered opinion.
‘Maybe less’.
Then we had to deal
with the task of telling everyone. I emailed work. One of the girls was speechless. Then
quickly found her voice. I phoned my mother – who cried and wasn’t sure why.
‘You know what causes breast cancer’ she asked, more statement than question.
‘No’, I replied. ‘Men’ she said, ‘pummelling your breasts’. I paused before
speaking, slightly bemused. ‘That’s why it’s always the left side, because men
are right handed’ she finished. I wondered whether I should mention that my
husband was left handed. And did this mean lesbians were immune as the cause
was very much associated with male manhandling. I tentatively suggested that
this may be bollocks.
The question of cause
did however remain. The doctor had informed me that it was not a genetic
version. Therefore I was left to wonder whether my decision not to have
children and consequent years on the pill had contributed, or my alcohol
intake. Or even the deodorant I used.
I emailed my father
and brothers. It was tough to receive their responses. The news clearly
affected everyone deeply and I sensed their feeling of sympathy, combined with
utter helplessness – being forced to watch someone they love go through all
that lay ahead.
My father emailed ‘I am so sorry, so sad for you. I had hoped
against hope that the early tests would be wrong. Please let me know if there
is anything I can do in any way.’
Bro the younger came back with
‘Woah. Thom. I have no idea what to say really. I'm very sorry, it's
very sad, I'm very sad. I'm sure you're very sad. Um. All our love to you and
Steve, I'm sure you'll fight through it okay, you're a tough 'un. I will rock
the bald look’.
And bro the elder ‘Well that is a very horrible blow. I'm very sorry to hear
that. Gosh what a shock. I will certainly pray for you and say Mass for you to
have fortitude and strength over the coming weeks and months. Do keep us
updated with news. God bless’.
As it’s the 21st
century I then posted the news on Facebook. Every response received indicated I
was a tough bint. I decided to take this as a compliment. Examples include:
‘you’re tougher than
that. I know you will find a way to glam your look’ (the imminent baldness)
‘hope it all goes
well. No part of it can be pleasant but I know you’re a strong girl’
‘ chin up..you’re a
tough old boot so dig your heels in and knuckle down’.
In a way the hardest
part was an October diagnosis. Breast cancer awareness month. It was
everywhere. Posters. Papers. Chuggers. I was aware. My family were aware. My
friends were aware. It was even in cartoons in the Metro, a play on words about
a mastectomy being the removal of a mast from a boat. You didn’t have to be
there. It wasn’t funny then either. The Evening Standard magazine had a page
advertising items you could buy where an amount of the purchase price would be
donated to breast cancer research. One of the items was pink hair
straighteners. Not many cancer patients need those – it was like selling
bottles of vodka to raise funds for alcoholics anonymous.
As work had had a
Macmillan coffee morning – the very same people who would be making my wig – I
thanked my CEO and commented that, as work had effectively bought it for me, for
a small fee I should get it made in company colours, perhaps with the logo on
the back. A bit of low cost branding.
That evening I started
chatting to a man who shared my daily commute home. In 1999 he had had
testicular cancer. He’d been through all this. We spoke candidly. Once upon a
time commuters saw each other every day without acknowledgement, other than
perhaps an occasional polite nod to indicate ‘hello’. On rare occasions there
may be a discussion about the weather or a witty aside if the train was late or
otherwise malfunctioning. But now I knew about his testicles and he knew about
my breast. It wasn’t right. It felt like I had let down my country by
infringing something so quintesessentially English.
I had been told that
surgery would most likely be in 3 – 4 weeks. This gave me time to plan my left
breast leaving party. When I saw the DJ in the pub over the weekend I asked if
he could do the music. He agreed and suggested some songs, such as ‘so long,
farewell, aufwiedersen, goodbye’.
We had a day out
arranged for my mother’s 70th. This was the first time I had seen
her or bro the elder since the news broke. She and I travelled up together on
the train where she told me a story about a man who had had prostate
cancer. Apparently the treatment involved radioactive pellets being inserted
into him – which had downsides such as not letting people sit on your lap. Also
you’re not allowed to be cremated as you’ll go off like a nuclear bomb. I was
unsure what would happen if the man accidentally was burned to death. Anyway,
after his eventual death the undertaker refused to bury him unless the widow
bought an expensive lead lined coffin. Or take his corpse to hospital for the
pellets to be surgically removed. I assured my mother that radioactive pellets
were not going to be put into me.
The day out was
marvellous. After a hearty breakfast in Soho we popped into a nearby gallery
that bro the younger had suggested. Only we went into the wrong door and ended
up in what appeared to a porn film studio. Realising our error, we hastily
retreated and it must have been a vaguely amusing sight for any passer by to
see a young woman, a 70 year old and a Roman Catholic priest emerge from this
den of iniquity.
We visited the Shard
and marvelled at the view. The London skyline seemed strangely flat from such a
height. The Olympic park appeared nearer than expected and the arches of
Wembley looked as difficult to get to as they actually were. My mother liked
watching the trains come and go from London Bridge station beneath us, like the
ultimate train set. This event was followed by a gargantuan Tea at the Ritz,
here sandwiches and cakes were brought continuously until you finally admitted
defeat. Bro the elder started talking about the ‘wafer thin’ sketch. We didn’t
want to think about it. The plate of scones, accompanied by jam and clotted
cream, helped to kill us off. Bro mentioned that a parishioner had brought round
some scones and trimming to him earlier, and that as soon he got home it was
all going in the bin as he couldn’t now face the sight of it. My mother
suggested giving it to the homeless but bro thought it cruel to make a homeless
person feel as we did now.
To finish off the day
we went to the Ice Bar for a champagne cocktail in sub zero temperatures (the
instructions outside included helpful information like ‘don’t lick the ice’ and
‘don’t remove your undergarments’) before we parted ways.
For most of the day no
one had even thought about my cancer. But before leaving my brother hugged me so firmly
and for so long that I recognised his otherwise silent concern.
Due to a body on the
line the train home was delayed. Expecting the inevitable sardine tin and
standing room only situation my mother was ready to pull her ‘I’m 70 card’
while I was all prepared with ‘I have breast cancer’. There was no need – we
got seats.
On the way home I let
her feel the lump. ‘Bloody hell’ she said, a look of shock on her face.
V
The inside of my elbow
was still sore and bruised from the blood test I had had the day before my
pre-op assessment – during which I was told I needed another blood test. So
then both arms were sore. ‘You’re going to have your tit cut off and you’re
moaning about a bruise on your arm’ Steve observed, trying to apply some
perspective.
At one of the blood
tests the nurse was harping on about her morning, traffic on the Eastern road,
48 year old baby son falling asleep on the train last night and needing a lift
home at 1am followed by a lift back to his car at the station this morning, and
so on. Then she looked at my blood test form and the Breast Ca written in the
diagnosis box. ‘Of course’, she chirruped, ‘in the great scheme of things none
of that seems very important’. I laughed to myself.
At the assessment I
was asked an extensive series of questions about every illness I had ever had,
and many that I haven’t suffered from at all. It included a question about who
I lived with. ‘Him’, I said, pointing to Steve. ‘And brother in law’. The nurse
smiled, and noted with comfort that the boys would look after me. Then she
turned to Steve and asked ‘Does she snore?’. ‘No’, he said. ‘Well, actually, a
little’. I scowled at him. ‘Not much’, he corrected. I continued to glare. ‘It
isn’t loud’. He stopped.
The main concern
really was that I fart like a trooper. That was also the primary worry about
being under anaesthetic. I had asked an anaesthetist friend of ours if anyone
let one go while under. ‘Nope’, he said. ‘What, never?’ I queried. ‘Never’ he
confirmed. If true, this was indeed a worry as I would surely defy these statistics.
We discussed the
process with the nurse in more detail. She explained that my lymph nodes would
be tested during surgery and may be removed. This would mean no injury should
befall my left arm for the rest of my life – not even having blood pressure
taken – as my body would be unable to remove any fluid that would usually be
sent there to aid the trauma. Then she showed us the prosthetics. The softie –
the one I would initially be sent home with was basically cushion stuffing
inside some cotton. The permanent one I would subsequently be fitted with was
incredible. It felt amazing. It even had a nipple. She told us it was made of
gel, which instantly made me wonder if I had to take it off and put it in a
clear bag to go through airport security. I was also curious about getting a
new one as I got older – my remaining breast would no doubt shrivel and sag
with age while the prosthetic would remain pert. Perhaps I could just leave it
out in front of the fire to melt it a bit.
Having omitted to ask
what type of cancer I had when at the initial diagnosis meeting, I asked now. Stage
3 invasive ductal carcinoma. The most common type of breast cancer, apparently.
At work a girl, whose
mother had had – and not ultimately survived – breast cancer asked what I would
do in terms of swimming costumes. It hadn’t occurred to me to use a prosthetic
in that situation. The visual appearance of having one breast was not something
that particularly bothered me. But none the less she sent me a link to a
website where you could get waterproof and chlorine proof ones. I could just
imagine swimming in the pool and accidentally dropping it – needing then to
dive down and retrieve my breast from the bottom (assuming of course that I
noticed it lying at the bottom before anyone else did). Her mother had
frequently left her prosthetic on the kitchen table. As a young girl her
friends would pop round, pick it up and innocently ask ‘what’s this, Mrs H?’.
It still didn’t feel
real, or that I was ill. This still concerned the boys who were worried about
when the impact would hit me. Weirdly, it sometimes felt as though random
strangers were looking at me differently, as though they could see my cancer as
clearly as if the diagnosis was tattooed on my forehead. But the prospect of
what lay ahead was becoming exciting. A new, (hopefully) once in a lifetime
experience. A character test. The concept of being a one tit wonder held no
dread for me at all. Steve tried to temper my enthusiasm. ‘You know what you’re
like when you’re a teeny bit ill’ he gently put forward. ‘This will be worse’.
Jon threatened to move out into his caravan for the duration. I tried to
explain that I knew when I woke from the surgery I would think ‘ooo, that
smarts a bit’. I knew I would sleep badly while the drains were in, which in
turn would make me grumpy. But none of that had happened yet. So I wasn’t going
to let it bother me now. For the record, I’m not a complete nightmare. But I am
an active do-er. I don’t like not being able to go about my life as usual. That
does annoy me. But I had every confidence in my ability to remain largely
unaffected. Even once the chemo started.
My approach towards
the chemo was simple. I have for many years had a motto that you can’t control
what happens to you but you can control how you react. I didn’t choose cancer.
I didn’t choose imminent hair loss. I couldn’t change those things. But I could
take control of the situation. I fully intended to do a charity head shave
prior to treatment. If I have to lose my hair, so be it. But I lose it when I
say so and how I say so. It’s my decision and not the drug’s. I could cut off a
ponytail to keep. This served a dual purpose. Naturally it would be a reminder of the hair I used to have. But also Steve liked me to drape my hair
across his wedding vegetables. I’m not sure if it was the feeling he liked, or
the proximity of my face to his nether regions. But by having the ponytail,
this would still be possible. Although, as a friend pointed out to me, I could
give him the hair and leave him to get on with it while I went off and did
other things.
I also intended to
keep working (from home) once the chemo started. The doctor had looked at me
quizzically when I said this and suggested that it was certainly a very ‘noble’
idea. Even the testicle cancer commuter tried to warn me that I would more or
less be asleep for 5 months. Still I refused to believe it. They didn’t know
me, or my determination not to give in. What they were also forgetting was that
I was a woman. I tried to reconcile the lengthy time away as being like a maternity
leave, only when the growth was taken out of me it wouldn’t be handed back with
the instruction to keep it alive, or else. So really, it was better.
My positive approach
was having an impact at work where there was a suggestion to hold a sweep stake
regarding the colour and curliness that my hair would be when it grew back.
At the end of the week
I received a letter with my surgery date. In 12 days time. Plans could start to
be made.
That night I had a bad
dream in which I arrived at hospital alone and early. I wandered around to kill time,
and then got lost in the maze of floors, corridors and lift areas. The panic
increased further as I realised I didn’t have any overnight things with me, and
was now running so late that I had probably missed my surgery slot. I woke with
a start.
Now that the surgery
was scheduled we could take a more educated guess at the dates for the next
stage. We have been told the chemo would start 4-6 weeks after surgery, so that
I was recovered from the operation before they made me ill. If 6 weeks, the
second cycle would be due on Christmas day. On the basis that the hospital was
not that mean, we decided that the therapy would start around the 4 to 5 week
mark.
My parents were both
concerned about the length of time before surgery happened. I wasn’t. It
conveniently fell on the day my annual season ticket expired and when we had no
plans for the week. It seemed strange for me to be re-assuring them.
I let my personal
trainer know the date, and tried to squeeze in the sessions I had paid for,
before going away for a few months. He was concerned, and upset. I will take
the view it was over me but it was possibly due to the loss of income and
imminent bankruptcy he would face without my custom.
When we went to rugby
that weekend a friend mentioned that he was aware of my situation and asked if
he would still be able to take the piss out of me. ‘Of course you can’ I
replied. ‘Good’ he said, ‘I just wanted to check you weren’t going to get all
sensitive about it’. I reckoned I would be alright, but had warned the boys that
if, when carving the Christmas turkey, they asked me in a suggestive manner if
I wanted breast, then I reserved the right not to be amused.
It was our turn to
host Christmas that year. My mother in law offered to do it, but I refused. The
boys could manage to cook Christmas lunch and if I was struggling, I would
simply stay in bed until guests arrived. If it was all a disaster, I could only
apologise.
7 more sleeps until M
day. The countdown was now down to the last of each day with both breasts.
Steve had started
sleeping badly due to work pressures on his mind. In the morning he told me he
felt guilty for worrying about work, aware that there were bigger things going
on that ought to be bothering him instead.
I saw an article in
the paper which claimed that research had shown cauliflower, broccoli and
cabbage helped protect against the effects of radiation and had shown benefits
in cancer patients. It was worth knowing and trying when the moment arrived. A
friend had said that her mother swore by Mackeson’s. Again, no harm trying –
possibly having a few if one didn’t appear to have much effect. When I
mentioned this at work there was a suggestion that they would send regular
crates round to me.
In bed that night
Steve started saying ‘Our father, who art in heaven, hallowed be thy cabbage’.
I laughed and said that it was ‘hallowed be thy name, give us this day our
daily cabbage’. The original version may have referred to bread. But he was not
convinced and kept murmuring ‘hallowed be thy cabbage’. We lay there, cuddled
up, giggling in the dark.
Dudley, my long
serving cat, had been ill for some time. We had taken him to the vet on the
morning of my first appointment at the one stop breast clinic (not one stop as
it turned out given how frequently I had now attended). He had a heart
condition and the vet wanted to do a blood test to check the effectiveness of
the drugs he was now on, and he needed his annual booster. During the
examination the vet’s face fell and he said there was no point doing the blood
test or jabs. He had found what seemed to be an aggressive tumour in Dudley’s
abdomen. So we knew that his days were numbered. We had also decided that it
would be sensible to call it a day and have him put down before I started chemotherapy – litter trays
and reduced immune systems probably not being an ideal pairing. However, he had
suddenly taken a turn for the worse. We decided to try and get an appointment
for the following evening for him to be put to sleep. When we woke the next day
we changed our minds. He needed an appointment first thing. I went to work, not
wanting to watch him go to sleep forever. Before setting off for the vet Steve
gently cuddled him. As he put him into the basket there was a small groan, and
he quietly passed away. It was the nicest way for him to go and there was much
comfort in that. This was turning into a month that would be remembered for all
the wrong reasons.
Dudley was in the
conservatory when I got home, wrapped in a blanket. I stroked him. He was cool,
rigid, but still soft. Disturbingly his eyes were still open and reluctant to
be closed.
The following morning
when I went to work, chuggers in bright pink filled Waterloo, collecting for
breast cancer. They lined Jubilee Bridge. I hadn’t expected to find it so touch
to see them. But it was like a punch in the chest, so soon after Dudley. That was a tough day. When I got home that
afternoon I dug a hole in the flower bed and buried him. It was an emotional
moment and my general good mood and positivity was getting a knock that was
hard to shake off. That evening we went to a Trafalgar Night party on HMS
Warrior. It was a good evening, but I could barely keep a lid on my emotions,
getting moist eyed at embarrassingly regular intervals.
Needing overnight
stuff for hospital and not having anything, I wanted to pick up some cheap
pyjamas over the weekend. Steve offered to get them but he could not be
entrusted with this task based on prior experience. The incident referred to
occurred around 7 years previously. I was admitted into hospital late at night
via A&E. Steve was sent home to collect overnight things for me. Knowing I
needed nightwear – and didn’t have any – he popped into the 24 hour Asda. When
he returned he told me sheepishly ‘this is all they had’ before handing me a
pink, glittery, Winnie the Pooh nightshirt. All they had! I doubted this.
During my stay I was visited by Dr George who was one of the most attractive
doctors I had ever seen – and there I was. In a pink, glittery, Winnie the Pooh
nightshirt. So this time I would choose.
I hadn’t thought there
would be time to fit in a left breast leaving party, but ended up organising
one by accident. It was the DJ’s fault. He responded to one of my facebook
posts saying he was no good with words but if there was anything else he could
do … I suggested he could knock out a few tunes. ‘When?’ he asked. ‘Sunday
night’ I suggested. That was fine with him provided it was ok with the pub. So
I checked with the Goldie if it would be a massive problem. It wouldn’t.
Crikey. Party
arranged. Now just the small matter of rallying some guests. It was a fabulous
evening. Dancing, singing, surrounded by friends. Far too much alcohol and too
late a night than was really appropriate for a school night – but you don’t
have a mastectomy every day. One of our friends amusingly commented to Steve
that from now on I would be a right tit.
Monday was a blur and
I did not relish my lunch time final personal training session. At the end my
instructor hugged me, saying I was an inspiration.
On my last day in the
office we went out for a team lunch. I told the girls at work about my plans to raise money
from the head shave event and they asked what charity it would be for. One
suggested cats and I replied that I had thought something more related to
cancer. So I came up with the Cancerous Cats at Home appeal, which she found
hilarious. They also liked the idea of finding a way to feed wine through the
fixed line that would be put into me when the chemo started.
Only one more sleep to
go, the quiet final moments before I become a one breasted cyclops. There was
an amazing electric storm that evening, bright lightning which went on for
ages, lightning that lit the sky. The thunder rumbled. And then the rain came.
V
The moment has
arrived. By the end of the day my severed breast will be in the medical
equivalent of a Tupperware box.
Now is where the story
really begins.
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